Ataxia Ireland CLG received the Inspectors' report from the Charity Regulator at the end of July 2017. The Board and staff of Ataxia Ireland CLG are totally committed to responding fully to the recommendations detailed therein by the CRA. However due to circumstances beyond our control we, the Board, were not in a position to respond to the CRA report within the original time-frame set out in that report. Consequently, the Board has requested (and were granted) an extension to the original deadline by the Charities Regulatory Authority. The Board have now committed to furnishing their response to the CRA by close of business on Friday the 1st September 2017 Ataxia Ireland CLG will have no further comment to make in the interim.

Ataxia Ireland Latest News

Jun
25

Summer Social 2017 »

Dr Petya Bogdanova opened proceedings with an illustrated report on the results from the ‘Living with Ataxia’ Survey which was circulated to all members.  This was followed by a buffet lunch...[read more]

Jun
17

VHI Women’s Mini Marathon 17th June, 2017 »

Many thanks to those who took part and raised funds for Ataxia Ireland, including Laura and her Mum - see below. ...[read more]

Jun
09

Bag packing fundraiser in Cournelscourt June 9th »

Thank you to all the volunteers who spent time out of their day to aid with our bag pack fundraiser in Dunnes Stores. The day went very well ...[read more]

May
16

YOGA – Every Thursday from 2.00-3.00pm »

Every Thursday from 2-3pm we will be running Yoga classes in our Social Centre. Classes will cost €5 and start on Thursday 18th May. Please phone the office on 01 299 9033 or email us at info@ataxia.ie...[read more]

Apr
24

ATAXIA IRELAND SOCIAL CENTRE »

The launch on Thursday, 20th April was a great success with some 20 people, including members and friends, meeting up for ‘a cuppa, a cake and some chat’ at the Ataxia Ireland offices, with...[read more]

Mar
01

Returned Surveys and Bumper Draw »

Congratulations to our Survey Draw Winners! 1st Prize Cyril Gerety €2000 and 2nd Prize Damien McDonagh €1000 Thank you to Niall Barry, Executive Director of Team Hope who drew the winning...[read more]

Dec
15

First 23 European Reference Networks for Rare Diseases »

On 15 December  the European Commission announced  the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between...[read more]

Dec
09

ATAXIA IRELAND COUNTRY CHRISTMAS LUNCH IN CORK »

Some 30 people gathered in the Oriel House Hotel in Ballincollig, Co Cork, for our first Christmas Lunch outside Dublin and in, what those attending called ‘The Real Capital’!  A delicious...[read more]

Recent Members Articles

'LIGHT' by Clodagh Clerkin - International Ataxia Research Conference »

The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015.   ++++++++++++++++++++++++++++++++++++++ The...[read more]

Kiara Lynch's Blog »

A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]

View All Members Articles »

Ataxia Ireland is a company limited by guarantee, with registered offices at 4 Leopardstown Business Centre, Ballyogan Avenue, Dublin 18, registered in Dublin number 566322.

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