Ataxia Ireland Latest News
Due to some confusion between our recent Members’ Survey and the previously-issued questionnaire from the Ataxia Clinic, approximately half of the surveys returned had no names on them (at top...[read more]
A new fitness programme designed by physical trainer Alan Dunne who has many years experience of working with people with disabilities. The programme focuses on improving core strength and building...[read more]
On 15 December the European Commission announced the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between...[read more]
Some 30 people gathered in the Oriel House Hotel in Ballincollig, Co Cork, for our first Christmas Lunch outside Dublin and in, what those attending called ‘The Real Capital’! A delicious...[read more]
Interferon Gamma study on Friedreich’s Ataxia in the US, did not meet it's requirements in a recent phase III study; Horizon Pharma have recently announced. This may mean research will have...[read more]
We have recently launched a new Awareness Video with the help of two of our members; Emily Felix and Ronan Clarke. The video shows the challenges of living with ataxia. However with the right support...[read more]
Members and friends had a convivial and busy afternoon at The Talbot Hotel. A full Christmas Dinner was served, followed by Santa’s visit, the inaugural screening of our Ataxia Awareness Video...[read more]
Recent Members Articles
The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015. ++++++++++++++++++++++++++++++++++++++ The...[read more]
A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]
Ataxia Ireland is a company limited by guarantee, with registered offices at 4 Leopardstown Business Centre, Ballyogan Avenue, Dublin 18, registered in Dublin number 566322.
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Gift Vouchers Valid for entry into our Monthly Lottery Draw for 6 or 12 months now available. Please see PDF for details and contact the office to purchase.