Ataxia Ireland Latest News

Jun
05

VHI Women’s Mini Marathon »

5th June 2017 The Vhi Women’s Mini Marathon in Dublin is the biggest event of its kind in the world. Every year since its inception in 1983 this event has seen its numbers rise with thousands...[read more]

Apr
24

ATAXIA IRELAND SOCIAL CENTRE »

The launch on Thursday, 20th April was a great success with some 20 people, including members and friends, meeting up for ‘a cuppa, a cake and some chat’ at the Ataxia Ireland offices, with...[read more]

Mar
01

Returned Surveys and Bumper Draw »

Congratulations to our Survey Draw Winners! 1st Prize Cyril Gerety €2000 and 2nd Prize Damien McDonagh €1000 Thank you to Niall Barry, Executive Director of Team Hope who drew the winning...[read more]

Dec
15

First 23 European Reference Networks for Rare Diseases »

On 15 December  the European Commission announced  the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between...[read more]

Dec
09

ATAXIA IRELAND COUNTRY CHRISTMAS LUNCH IN CORK »

Some 30 people gathered in the Oriel House Hotel in Ballincollig, Co Cork, for our first Christmas Lunch outside Dublin and in, what those attending called ‘The Real Capital’!  A delicious...[read more]

Dec
08

Interferon Gamma study on Friedreich’s Ataxia in the US »

Interferon Gamma study on Friedreich’s Ataxia in the US, did not meet it's requirements in a recent phase III study; Horizon Pharma have recently announced. This may mean research will have...[read more]

Dec
07

Ataxia Ireland Awareness Video »

We have recently launched a new Awareness Video with the help of two of our members; Emily Felix and Ronan Clarke. The video shows the challenges of living with ataxia. However with the right support...[read more]

Dec
03

ATAXIA IRELAND CLG CHRISTMAS LUNCH AND SOCIAL »

Members and friends had a convivial and busy afternoon at The Talbot Hotel.  A full Christmas Dinner was served, followed by Santa’s visit, the inaugural screening of our Ataxia Awareness Video...[read more]

Recent Members Articles

'LIGHT' by Clodagh Clerkin - International Ataxia Research Conference »

The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015.   ++++++++++++++++++++++++++++++++++++++ The...[read more]

Kiara Lynch's Blog »

A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]

View All Members Articles »

Ataxia Ireland is a company limited by guarantee, with registered offices at 4 Leopardstown Business Centre, Ballyogan Avenue, Dublin 18, registered in Dublin number 566322.

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