First 23 European Reference Networks for Rare Diseases - A milestone for 30 million patients in Europe
On 15 December the European Commission announced the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between rare disease patients, clinical experts, and policy makers in EU Member States, at the European Commission and the European Parliament to bring the ERNs to fruition.
Read the full text here: http://www.eurordis.org/sites/default/files/pressrelease-ern.pdf
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