Research

In This Section

First 23 European Reference Networks for Rare Diseases »

On 15 December  the European Commission announced  the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between...

Interferon Gamma study on Friedreich’s Ataxia in the US »

Interferon Gamma study on Friedreich’s Ataxia in the US, did not meet it's requirements in a recent phase III study; Horizon Pharma have recently announced. This may mean research will have...

Living with Ataxia National Survey »

We are launching this survey with the National Ataxia Clinic in Tallaght Hospital. The aim of the survey is to establish the impact of having ataxia on quality of life and also the costs of the condition...

The company Horizon Pharma has bought the right for Interferon Gamma in Europe »

Horizon Pharma is running a phase-III trial in USA using Interferon gamma and completed the recruitment of 90 patients with Friedreich's ataxia early this month. They have now announced the agreement...

Annual Ataxia Conference 2016 »

Over the course of 3 days, junior and senior scientists gave presentations on the progress of their research. They talked about the different genes that are important in the function of the Cerebellum....

EXCITING NEWS FROM DR PETYA BOGDANOVA (Ataxia Clinic Registrar) – December 2015 »

The term ‘ataxia’ originates from Greek (α- [no] + -τάξις [order]) and means "lack of order". Ataxia can affect almost all movements, including...

International Ataxia Research Conference 2015 »

Beaumont Estate Windsor, UK Hosted by Ataxia UK, Ataxia Ireland, FARA, and GoFAR, ARC 2015 took place at Beaumont Estate near Windsor over 4 days, from 25-28 March.  It was an international...

Nicotinamide Trial »

Please see details forwarded to us by Ataxia UK on this research which we are co-funding with them. http://www.ataxia.org.uk/pages/fa-vb3-trial1.html ...

Follow Ataxia Ireland on Facebook Follow Ataxia Ireland on Twitter

Monthly Lottery sign up button


Text "ATAXIA" to 50300 to donate €4 now! »

People living with an Ataxia benefit enormously from the many services provided by Ataxia Ireland.
Help us to continue helping them


Donate to Ataxia »

Donate to FASILend a helping hand...
Donate to FASI

Ataxia Organsiations »

Click to view European Ataxia OrganisationsClick on the map to access an interactive map for Ataxia organisations worldwide

Follow Ataxia Ireland