Research News

This page reports up to date news regarding research into Friedreich's Ataxia.

Taking Part in Research

If Irish participants are accepted for trials, please advise your willingness to take part by responding to info@ataxia.ie

EFACTS

Please find link to the first issue of the Efacts Newsletter.

In This Section

euro-ATAXIA 2011 Research Summary (courtesy of Ataxia UK) »

Several researchers took time out from their busy schedules at the scientific conference to give presentations about their current research to euro-ATAXIA. We are very grateful to all who contributed...

Report on Gene Therapy by Dr. Michele Lufino for BabelFAmily - June 7, 2010 »

Many diseases are caused by an error, or mutation, in the DNA sequence of a gene which makes it non-functional. Mutated genes often fail to produce a protein product which may be essential for the correct...

Santhera’s MICONOS Trial – May 2010 »

Liestal, Switzerland, May 20, 2010 – Santhera Pharmaceuticals (SIX: SANN) announced today that its MICONOS Phase III study evaluating Catena®/Sovrima® for the treatment of Frie-dreich’s...

Dr Alison Stevenson’s Research Presentation – April 2010 in Dublin »

View Presentation (PDF 3.46mb) ...

FARA Report on Varenicline trial – April 2010 »

Springfield, VA - April 12, 2010 In June 2009, the Friedreich’s Ataxia Research Alliance (FARA) announced the launch of a clinical trial of varenicline (Chantix®) to investigate both safety...

Repligen Trials Update »

Please click to read news received from GoFar regarding Repligen trials and as per previous report from Turin...

New Research in Melbourne – Feb 2010 »

By NICK MILLER, February 11, 2010 MELBOURNE scientists have made a breakthrough in the hunt for a cure for Friedreich's ataxia, a genetic disease with no known treatment that causes slow nerve degeneration...

Final Report of Soragni and Gottesfeld Research on Frataxin Gene »

Time dependence and dose response of HDAC inhibitors of the pimelic diamide family on the chromatin structure of the frataxin gene Principal researchers: Elisabetta Soragni & Joel Gottesfeld,...

Improved GAA repeat expansion mutation-based mouse model of FA for therapeutic testing by Mark Pooks »

Principal researcher : Dr. Mark Pook Biosciences Division, Brunel University, Uxbridge, UK. Lay summary: Friedreich ataxia (FRDA) is a lethal inherited neurological disorder for which there is currently...